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Well, I counted up all the coins and notes I collected on Monday, plus some of my own donation fund, and it adds up to £92.40. Which is absolutely amazing for one day of fundraising on my own. There was another £25 people already donated online, which means I’ve exceeded the £100 target.
Here is why I’m doing it:
Harlequin-type ichthyosis is the most severe form of congenital ichthyosis. Swelling to the eyes, ears, and other appendages, mean that the babies born with this skin disease have difficulty seeing, breathing, or even moving.
The texture of the skin means it cannot bend where soft skin usually can, it’s cracked texture is agonising and means the babies are prone not only to infection from the bleeding exposed cracks, but from hypothermia also.
Medication such as Isotrex, which improves their quality of life, are essential. But with your help, further treatments can be found, and you will be contributing to the life-time care that Harlequin sufferers require.
Please click here for more info: http://www.justgiving.com/RNoakes
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