Image via Wikipedia
Firstly, I haven’t been doing this long. But I spent the past few months completing my training, with certificates in First Aid, Health & Safety, Movement & Handling etc. Then I began my mentoring, so I am still not “flying solo”, but I learn from watching/helping the people whom have been carers for much longer.
Today I felt choked up, it was my first time at Mrs Anonymous’s house (Patient confidentiality of course). She has Multiple Sclerosis, and paralysis on one side, meaning she is wheelchair bound and can only use one arm. Not to mention the fact she is 90-something years old, with severe arthritis that curls her toes and fingers into gnarled roots. The discomfort she is constantly in is little eased by medications and prescription creams.
She lives completely alone, with no pets. Pays for her own care, rather than accepting benefits, so perhaps she had a wealthy past. The radio is her friend once we serve her meal and say goodbye, leaving a cup of Earl Grey in the microwave for her like she instructs. She is meticulous, extremely specific in what she wants, even where you place her hairbrush, because this is the only control or power she has left. It’s heartbreaking. Reminds me of my grandmother somewhat, which was the main reason I wanted to do senior care, except my grandmother has Alzheimer’s, and this lady, Mrs Anonymous, seems mentally sharp despite the M.S. But isn’t that the worst part? To be mentally alert but trapped in a crippled body, like a butterfly with broken wings.
Why am I writing this post? I guess I just wanted to give you a glimpse into what caring is really about, and would ask anyone whose grandparents are still alive, to please visit them, take care of them. No one should have to be alone like Mrs Anonymous.
Image via Wikipedia
Well, I counted up all the coins and notes I collected on Monday, plus some of my own donation fund, and it adds up to £92.40. Which is absolutely amazing for one day of fundraising on my own. There was another £25 people already donated online, which means I’ve exceeded the £100 target.
Here is why I’m doing it:
Harlequin-type ichthyosis is the most severe form of congenital ichthyosis. Swelling to the eyes, ears, and other appendages, mean that the babies born with this skin disease have difficulty seeing, breathing, or even moving.
The texture of the skin means it cannot bend where soft skin usually can, it’s cracked texture is agonising and means the babies are prone not only to infection from the bleeding exposed cracks, but from hypothermia also.
Medication such as Isotrex, which improves their quality of life, are essential. But with your help, further treatments can be found, and you will be contributing to the life-time care that Harlequin sufferers require.
Please click here for more info: http://www.justgiving.com/RNoakes
Image via Wikipedia
It’s something I’ve looked into before, but I found an interesting article tonight:
Click here to see
I have deep sympathy for anyone that contracts the disease, but particularly those who simply could not prevent it; rape victims, babies born with it, etc. What makes matters more complex is when someone within Healthcare has this disease. As stated in the article I linked, there are regulations on declaring positive test results, and prohibitions when it comes to surgeries, sutures, and any situation that may pose a risk of transmission.
In short, it is not legal to fire a doctor or dentist for having HIV or AIDs, but their career is effectively over nonetheless. What a terrible thing for them, to have gone through so much schooling and hardship only to be brought down by a disease. In any other walk of life they may continue relatively as normal; because improved medication generally means a higher quality of life, and the delay of full-blown AIDs stemming from testing HIV positive.
But it is necessary, for others safety, that transmission risks are minimised. I must admit I would prefer to be treated by a doctor or dentist whom was not HIV positive, and it would be nothing against the person. A disease shouldn’t dehumanise anyone. I just know that if I were HIV positive I would never want to risk infecting others, and would certainly never want anyone to infect me either.
The best thing anyone can do is protect others, ourselves, and encourage the progression of medical research.
End of my boring rant.